Giving to those living with rare disease, is not just an opportunity to share in their delight of the unexpected, it is also an occasion to understand what it means …Read This Post
Hope is like the ripest fruit at the top of the tree, always in our grasp; with our feet planted firmly to the ground, our minds are forever reaching with …Read This Post
During this time of year, we are constantly engaged in the spirit of giving. We take time to buy presents for the upcoming Holiday, buy food for the homeless, and …Read This Post
On Wednesday, November 14, RDLA, National Health Council, and Shire, in coordination with Rare Disease Caucus Co-Chairs Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY) will be participating in a briefing to discuss next steps for rare disease policy.
Help ensure …
The election is over, and the status-quo remains. Republicans remain in control of the House of Representatives, while Democrats retain control of the Senate and White House.
When Congress returns to …
It happens all the time. The phone rings, the e-mails pour in, and the flurry of comments rush in on personal posts, individuals eager to find that one person or …Read This Post
Life Cycle of Orphan Drug Development & Commercialization Conference
January 16-18, 2013
The Life Cycle of Orphan Drug Development & Commercialization Conference will focus on the current landscape of rare disease …