Giving to those living with rare disease, is not just an opportunity to share in their delight of the unexpected, it is also an occasion to understand what it means …

Hope is like the ripest fruit at the top of the tree, always in our grasp; with our feet planted firmly to the ground, our minds are forever reaching with …

During this time of year, we are constantly engaged in the spirit of giving.  We take time to buy presents for the upcoming Holiday, buy food for the homeless, and …

On Wednesday, November 14, RDLA, National Health Council, and Shire, in coordination with Rare Disease Caucus Co-Chairs Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY) will be participating in a briefing to discuss next steps for rare disease policy.
Help ensure …

The election is over, and the status-quo remains. Republicans remain in control of the House of Representatives, while Democrats retain control of the Senate and White House.
When Congress returns to …

It happens all the time.  The phone rings, the e-mails pour in, and the flurry of comments rush in on personal posts, individuals eager to find that one person or …

Life Cycle of Orphan Drug Development & Commercialization Conference
January 16-18, 2013
Boston, MA
The Life Cycle of Orphan Drug Development & Commercialization Conference will focus on the current landscape of rare disease …