NIH Stem-Cell Program Closes

Therapies based on induced pluripotent stem cells, here differentiating into retinal cells on a scaffold, were the focus of the Center for Regenerative Medicine. 
Credit: NIH

By Sara Reardon and Nature magazine Stem-cell researchers at the National Institutes of Health (NIH) have been left frustrated and confused following the demise of the agency’s Center for Regenerative Medicine (CRM). The intramural program’s director, stem-cell biologist Mahendra Rao, left the NIH, in Bethesda, Maryland, on 28 March, and the center’s website was taken down on 4 April. Although … [more here...]

Pharmac Seeks Feedback on New Rare Disease Fund

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Pharmac is seeking public feedback on a new funding approach specifically geared for high-cost medicines for rare disorders. The use of a contestable … [more here...]

Boston Marathon: Genzyme Runners Supporting ‘Rare’ Cause


By Anamika Roy Daily News Staff A team of Genzyme employees is running for a “rare” cause on Marathon Monday. In partnership with the National … [more here...]

May is Williams Syndrome Awareness Month! Learn How You Can Support the Cause.


Organization: Williams Syndrome Association Submitted by: Mike McFall Thousands of children and adults are expected to join the Williams Syndrome … [more here...]

Mom of Son with Lowe Syndrome Leaves Job at NASA to Help Educate Others


Why does he have glasses so young?  Why is he small for his age?  What is Lowe Syndrome?  These are just some of the questions I get asked often … [more here...]

GLOBAL GENES™ Launches “RARE Toolkits” as Premier Educational Resource for the Rare Disease Community

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Series of RARE Disease Toolkits Enable Advocates, Patients and Caregivers to Empower Themselves and Inspire Others With 1 in 10 Americans living with … [more here...]

A Foundation Building Strength Requesting Applications for Research, $1 Million in Funding


A Foundation Building Strength is excited to announce funding of up to $1 million dollars to a winning grant who provides the best proposal on … [more here...]