New Mom Develops Guillan-Barre Syndrome After Difficult Labor

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When Heather Hodsdon walked into Belmont Wheelworks in April 2010 to get her bicycle fixed, manager Gary Wood couldn’t help but laugh. Hodsdon was planning to do the Hyannis Port Challenge for Best Buddies, a 100-mile ride from Boston to Cape Cod. “She bought it when she was 12 years old and it was like a kid’s bike,” he says. Hodsdon ended up buying another bike — and dating Wood. The … [more here...]

Students Aid Children with Terminal Genetic Brain Diseases


Source | Clara-Meretan Kiah/Staff Writer | [Florida International University] teamed up with the Mathew Forbes Romer … [more here...]

Balancing Act Premieres New Segment on Paroxysmal Nocturnal Hemoglobinuria Tomorrow Morning

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(PNH) Paroxysmal Nocturnal Hemoglobinuria is a deadly life-threatening disease with devastating consequences.  35% of patients die within 5 years of … [more here...]

3rd Annual Orphan Drugs and Rare Diseases Conference Taking Place Oct 20-21st in London

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SMi are proud to present the 3rd Annual Orphan Drugs and Rare Diseases Conference. The Orphan Drugs market is set to rise as a result of … [more here...]

A Family Diagnosis of Adult Polyglucosan Body Disease (APBD)


I was in my early 50's when I started experiencing leg cramps, stiffness and heaviness in my legs, muscle twitching and soreness, foot dragging, and … [more here...]

Las Vegas Art2 Downtown Arts Festival Held in Honor of GBS-CIDP International Foundation


The Art² Downtown Arts Festival with be a one-day art festival celebrating the best independent artist, craftsmen, and designers from around the Las … [more here...]

“How Can We Incorporate the Patient’s Voice?” Mass. Biotech Hosts Conference on Nov 10th

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The Massachusetts Biotechnology Council is hosting a conference this November 11th, 2015. The organization is an association of more than 650 … [more here...]