On July 10, 1997 I became a mom for the first time. I had no idea what that truly meant at the time, but it wouldn’t be all that long before I learned. My daughter Allison was diagnosed with Williams syndrome when she was three months old. [...]
7000 Bracelets for Hope™
Learning to be a Mom Through “Trial by Fire”: Allison’s Story of Hope
April 10, 2013 by Leave a Comment
Designers Donate Gifts of Hope
February 28, 2013 by Leave a Comment
A chance to give someone suffering from a rare disease or genetic disorder an opportunity to experience hope, understanding and compassion is the goal of the 7000 Bracelets for Hope program. The following jewelry designers have embraced the opportunity to show their support for these [...]
Hope Bracelet Symbolizes an Intertwined Network of Support During a Long Journey, Seeking a Diagnosis for Alex
February 18, 2013 by 2 Comments
After more than two years of extensive testing, Alex is still undiagnosed for a progressive neurodegenerative disease that slowly over the course of the past 15 months has taken away Alex’s abilities to walk, write, talk, sit, feed himself and even to play and build with [...]
Artist and Teacher, Rachel Baron, Along with the Help From her Students Make a Difference for Those Affected by Rare Disease
February 11, 2013 by 1 Comment
Rachel Baron, a jewelry artist and teacher from Lancaster High School, NY engaged her students in a community service project creating bracelets to support families affected by rare disease. Together, Rachel and her students donated over 50 bracelets to the 7000 Bracelets for Hope program. [...]
Tarlov Cysts Disease: What My Hope Bracelet Means to Me
December 11, 2012 by Leave a Comment
What this bracelet means to me. That one day hopefully there will be a cure to this very painful, crippling disease called Tarlov Cysts Disease. As I have cysts eroding my sacrum bone and the nerves in my spine, it is slowly paralyzing my body. My [...]
Gifts of Hope, Treasures to Keep: The Spirit of Giving to Rare Disease
December 10, 2012 by Leave a Comment
Giving to those living with rare disease, is not just an opportunity to share in their delight of the unexpected, it is also an occasion to understand what it means to experience hope. Hope for compassion, understanding, and shared acceptance of the realities of their [...]
Gifts of Hope, Treasures to Keep: The Spirit of Giving to Rare Disease
December 4, 2012 by Leave a Comment
During this time of year, we are constantly engaged in the spirit of giving. We take time to buy presents for the upcoming Holiday, buy food for the homeless, and write our names on the endless tags of wish lists on community giving trees. Where [...]
