‘American Idol’ Winner, Singer/Songwriter Kris Allen to Perform at 2014 Global Genes Tribute to Champions of Hope Gala

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Over 600 patients, advocacy leaders, biotech and pharmaceutical executives, healthcare philanthropists and celebrities to gather in Huntington Beach for event honoring achievements in rare disease ALISO VIEJO, Calif., September 4, 2014 - Global Genes™ announced today platinum recording artist Kris Allen, best known for winning season eight of ‘American […]

Patient Advocacy Summit 2014: The Must-Have Collaborations for Successful Drug Development

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Ready to hone your skills of collaboration and develop a better understanding of the drug development process? At this year’s Patient Advocacy Summit moderators of this session hope to develop a white paper from the group’s participation. As they lead you through the step-by-step process, […]

Patient Advocacy Summit 2014: E-Patient Revolution

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This session is presented by Health 2.0 and Smart Patients. One session. Three segments. Everything you need to know about the E-Patient Revolution and how you can help pull patients in need out of isolation and into the open network of health information. Together, we have […]

Patient Advocacy Summit 2014: Preparing for Success – Lobbying at the State and Federal Level

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In America, the power to make change is available to all. But knowing how to effectively use your time and energy to make a difference is something that requires a full understanding of how lobbying works at the state and federal level. Are you looking […]

Patient Advocacy Summit 2014: Caregiving

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Presented by Caregiver Action Network and Partners on the Path this year’s 2014 Global Genes Patient Advocacy Summit will feature speakers John Schall and Jane Hamilton. Attendees will learn both how to link to outside resources that will help them solve caregiving challenges and how to build […]

Patient Advocacy Summit 2014: Patient-Centered Benefit-Risk Assessment, Why It Matters to You

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Advocates at this year’s 2014 Global Genes Patient Advocacy Summit will have an exclusive chance to learn how their voice can make a difference in the fight for faster cures. For critical patients and their families, the risk versus benefit of new treatments has been […]

Patient Advocacy Summit 2014: The Unstoppable Charity

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We all have our reasons. Sons, daughters, parents and friends—it’s a guarantee that anyone managing this sort of charity non-profit has been touched by the power—and more often than not, the powerless feeling of colliding with the complexities of rare disease. At this year’s RARE […]