Can’t Make it to our 2014 Patient Advocacy Summit? Yes You Can! Watch It LIVE!


Though seating may have been limited and is now sold out–there is plenty of room for you to join us for our special two-day event online!  We’ll be streaming the entire summit LIVE online through Livestream. It’s easy to participate! 1. Click here to register […]

Patient Advocacy Summit 2014: Transition and Transformation – Rare Disease in Adolescence and Adulthood

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Produced as a part of our RARE Toolkit series by the same name, this session features advice and guidance from Maya Doyle,  Senior Pediatric Social Worker of Children’s Hospital at Montefiore. For those caregivers working with young adults, this session will discuss the transition into […]

‘American Idol’ Winner, Singer/Songwriter Kris Allen to Perform at 2014 Global Genes Tribute to Champions of Hope Gala

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Over 600 patients, advocacy leaders, biotech and pharmaceutical executives, healthcare philanthropists and celebrities to gather in Huntington Beach for event honoring achievements in rare disease ALISO VIEJO, Calif., September 4, 2014 - Global Genes™ announced today platinum recording artist Kris Allen, best known for winning season eight of ‘American […]

Patient Advocacy Summit 2014: The Must-Have Collaborations for Successful Drug Development


Ready to hone your skills of collaboration and develop a better understanding of the drug development process? At this year’s Patient Advocacy Summit moderators of this session hope to develop a white paper from the group’s participation. As they lead you through the step-by-step process, […]

Patient Advocacy Summit 2014: E-Patient Revolution


This session is presented by Health 2.0 and Smart Patients. One session. Three segments. Everything you need to know about the E-Patient Revolution and how you can help pull patients in need out of isolation and into the open network of health information. Together, we have […]

Patient Advocacy Summit 2014: Preparing for Success – Lobbying at the State and Federal Level


In America, the power to make change is available to all. But knowing how to effectively use your time and energy to make a difference is something that requires a full understanding of how lobbying works at the state and federal level. Are you looking […]

Patient Advocacy Summit 2014: Caregiving


Presented by Caregiver Action Network and Partners on the Path this year’s 2014 Global Genes Patient Advocacy Summit will feature speakers John Schall and Jane Hamilton. Attendees will learn both how to link to outside resources that will help them solve caregiving challenges and how to build […]