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Patient Stories

A total of 137 posts are filed under Patient Stories
Rylie’s Smile: Tooth Pain and Puffy Face Leads to Aggressive Giant Cell Granuloma Diagnosis
Rylie started her foundation, Rylie’s Smile Foundation, to help other children who are battling for their lives with a rare disease or… Continue Reading
Twin Diagnosis: Angelman Syndrome and the Bjorklund Girls
Anika and Sophia Bjorklund, identical twins who are now 6-½ years old, were born premature and spent 25 days in the NICU because of feeding… Continue Reading
Drew “Our Sweet Warrior” with Campomelic Dysplasia
Up until our 28 week ultrasound, our sweet baby boy, Drew, had looked perfect on every ultrasound. It was at that time, however, we learned… Continue Reading
KFS Patient Joined Group Looking For Support But In The End Found Love
My name is Barry and I know that it is truly a miracle that I found Gera. See, we have something in common that most couples don’t. It’s… Continue Reading
Family 1a-2
The Smith Family Raises Awareness for “Parents of Medically Challenged Kids”
My name is Chad Smith, also known as “Chad the Dad”. My wife, Becky, and I are the proud parents of two wonderful children, Aleah who is… Continue Reading
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Teen With Noonan Syndrome Accepts Prom Invitation from School Football Star
Autumn Pollard was unaware that her high school hosted an annual prom until she was invited in front of the entire school. Autumn is a… Continue Reading
Never Underestimate a RARE Kid! Joslyn Runs for GOTR
Joslyn joined Girls on the Run (GOTR) because she wanted a tutu. She had seen the girls at her school last year all wearing their tutus and… Continue Reading