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Patient Stories

A total of 90 posts are filed under Patient Stories
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Kallmann Syndrome Causes Absent Puberty
Kallmann syndrome is a rare genetic hormonal condition. Its primary symptom is a failure to start or fully complete puberty, it is also… Continue Reading
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Clippers Deliver a Dream for Kid Guest Announcer with Batten’s Disease
Friday, July 25, 2014 was a memorable day for the Dahl family of Chatham, Illinois. Parents David and Corrina, and their sons Clifford, 17,… Continue Reading
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Bone Marrow Transplant Needed for 11-Year-Old with CARD9
Eleven-year-old Nicholas Ambrose has one wish — to be a normal kid. You wouldn’t know it from his megawatt grin, but Nicholas… Continue Reading
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Quincy Girl Fighting Atypical Teratoid/Rhaboid Tumor Will Visit Disney World
Three-year-old Alisha Savage has spent nearly two-thirds of her young life in and out of hospitals being treated for a rare brain tumor. But… Continue Reading
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A Visit With a Princess: Alana with XLH
Last night was rough. I had just gotten back to my parents house in Orlando from Clearwater, Florida after a successful hometown premiere… Continue Reading
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Global Developmental Delays in Preston Leads to Birk-Barel Syndrome Diagnosis
Preston Kelley was born December 27, 2013. He spent the first three months of his life in the NICU at Children’s Hospital of Orange… Continue Reading
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Daughter Receives Mitochondrial Disease Diagnosis After She Stops Talking
Ataahua McFarlane was two years old and developing like most toddlers her age when one day she suddenly stopped talking. It was out of… Continue Reading