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Patient Stories

A total of 161 posts are filed under Patient Stories
Blane’s Story: Hirschsprung’s Disease
Our son Blane was life-lighted 2 hours away to Geisinger Medical Center in Danville, PA the day after I delivered him. The day I delivered… Continue Reading
Prayers For Karlos
Karlos Has Spondylocostal dysostosis​, Pectus Excavatum, Congenital Scoliosis, Thoracic Insufficiency Syndrome, Reactive airway disease,… Continue Reading
Emmanuel with Pfieffer Syndrome is “a Happy Child”
Emmanuel, in his short four years on earth, does not understand that he is different from others. With the complications of Pfeiffer… Continue Reading
Fighting for Grace, Born with Hydrocephalus
At 18 weeks we went to the imaging center to find out if we were going to be having a little girl or boy! Little did we know we would get a… Continue Reading
My Gastroparesis Journey
Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn’t realize it. The first migraine I had… Continue Reading
Black-Colored Urine? How We Discovered Our Son Had Alkaptonuria (Black Bone Disease)
Last year, our very lively, happy and healthy little boy was diagnosed with Alkaptonuria (AKU) also known as Black Bone Disease.… Continue Reading
Our Motto With Angelman Syndrome? Just Keep Swimming!
Just keep swimming….Because Max is still smiling! Max is a 13-year-old boy who loves horseback riding, going to the pool and watching… Continue Reading