From Our Affiliates

Coalition Duchenne: Raising Global Awareness for a Fatal Muscle Wasting Disease


Duchenne is caused by a defect in the gene that codes for the protein dystrophin, a vital protein that helps connect the muscle fiber to the cell membranes.

Duchenne is a fatal progressive muscle wasting disease that affects one in 3,500 boys worldwide.

MISSION

The mission of Coalition Duchenne is to raise global awareness for Duchenne muscular dystrophy, to fund research and to find a cure for Duchenne.

Coalition Duchenne is focused on funding cardiac and pulmonary initiatives that will help all boys with Duchenne.

VISION

Our vision is to change the outcome for boys and young men with Duchenne; to rapidly move forward to a new reality of longer, fulfilled lives, by funding the best opportunities for research and creating awareness.

Goals

To raise global awareness for Duchenne through events and media.
To raise funds for research to cure Duchenne.
To leverage our funding and accelerate research through relationships and innovative thinking.
To acknowledge the boys and men across the world who suffer from Duchenne.
To honor the boys and men who have lost their lives to Duchenne.

In the news:

Award Winning Film Crew to Visit Sabah To Document Mt Kinabalu Charity Climb

New Documentary “Dusty’s Trail – The Summit of Borneo” to raise awareness for Duchenne Muscular Dystrophy

Coalition Duchenne, a leading charity raising funding and awareness for Duchenne muscular dystrophy (Duchenne), planned to climb Mt. Kinabalu as part of its second annual Expedition Mt. Kinabalu on August 24-26, 2012. An award winning documentary team from Dreamquest Productions was set to accompany the international team of 60 climbers, led by the Coalition Duchenne founder Catherine Jayasuriya, whose grandmother was a Kadazandusun and whose 19-year-old son Dusty Brandom has Duchenne.

The documentary, which has the working title “Dusty’s Trail – The Summit of Borneo,” catalogs the inspirational life of Dusty, a young man with Duchenne, and his family’s quest to raise global awareness about the disease. The documentary is being produced by Present Moment Yogi Productions, a fledgling Californian production company. Filming began in California in July 2012.

To read more about this journey, please follow the link HERE to the Coalition Duchenne website.

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