From Our Affiliates

Bracelet Recipient, Lisa Auerbach Shares Hope While Battling Ehlers-Danlos Syndrome (EDS)


Lisa Auerbach, battling Ehlers-Danlos Syndrome (EDS) made these bracelets to show her support for others with a rare disease.

Lisa Auerbach cherishes the Hope bracelet she recently received.  Lisa is battling Ehlers-Danlos Syndrome(EDS), a connective tissue disorder which affects every system in the body.   Lisa’s symptoms include dislocating joints, Postural Orthestatic Tachycardia (POTS), severe headaches and pain.  She will most likely need significant neck surgery in the near future to correct the instability.  Despite Lisa’s battle with EDS, she is making bracelets to show her support for people affected by rare disease and encouraging others to do the same.

I decided that it would be nice to be involved in this wonderful project and make some bracelets to submit. I told one of my co-workers about “7000 Bracelets” and she happily made three. Hopefully, more of my talented friends will submit additional bracelets too.

It is about sharing hope, and as a recipient, I am proud to spread more hope to all of us with rare disorders and I appreciate the opportunity to do so.  Thanks!   – Lisa Auerbach

To learn more about Ehlers-Danlos Syndrome (EDS) visit EDNF.org.

Thank you, Lisa!  We are inspired by your strength and appreciate your support!

Filed Under: Uncategorized

Tags:, , , ,

Facebook Comments

Join The Conversation

  1. Heather Earley says:

    Hi Natalee! The best individual to speak to about our 7000 Bracelets for Hope program is Lisa James:
    Lisa James
    Manager, Community Development
    Global Genes | RARE Team
    O: 949.248.7273
    lisaj@rareproject.org

    Please feel free to contact Lisa for further information! Have a wonderful holiday!!!

    - The Global Genes Team

  2. Natalee says:

    Where can you purchase the bracelets at?

Leave A Comment

*