Mila Fights 15q24 Microdeletion Syndrome


Limp noodle, lazy bones, Mila bird, noodle bear…those were just a few nicknames we had for our sweet baby. She loved music. She loved being talked to. She loved to be loved. Her head bopping received attention everywhere we went. It was her personal dance […]

My Journey with Jude and 15q24 Microdeletion Syndrome

Jude may be in pain, but he is always so brave and happy.

On December 23, 2012 I gave birth to Jude Thomas. Once we got home, Jude would sleep so much I could not get him to eat. I was so relieved the morning we headed to the pediatrician’s office for the first visit. Sure enough he […]

3 Year Old Boy Fighting 15q24 Microdeletion Syndrome Receives Beautiful “Two Generations of Hope” Bracelet

Chase and Courtney Rutherferd. Chase is fighting 15q24 Microdeletion Syndrome

Courtney Retherford from Pleasant Plain, OH, and her 3 year old son Carson recently received their bracelets for hope in support of their fight against chromosome 15q24 microdeletion syndrome.   This condition has a wide range of characteristics  including developmental delay, hearing loss and hypotonia. […]