BIO Patient and Health Advocacy Summit: Registration Now Open

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    The Power of Partnerships Please join us for the BIO Patient and Health Advocacy Summit. This event will bring together voluntary health organizations and the biotechnology industry for two days of policy-driven panel discussions, best practice seminars and invaluable networking opportunities. The Summit […]

Faircraft Records/Universal Republic Recording artist Chris Mann and Singer/Songwriter Katrina Parker to Perform at Global Genes | R.A.R.E Project’s Tribute to Champions of Hope™ Benefit

Chris Mann, Nestor Serrano, Jason George and Katrina Parker

FOR IMMEDIATE RELEASE Actors Jason George, Nestor Serrano and Meagan Tandy will Serve as Celebrity Award Presenters; Henri Termeer, Former President and CEO of Genzyme, will Receive Lifetime Achievement Award DANA POINT, CA – August 30, 2012 – Global Genes | R.A.R.E. Project (www.globalgenes.org) today […]

Improving Drugs and Biologics for Children – Washington DC Briefing

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The laws named the Best Pharmaceuticals for Children Act and Pediatric Research Equity Act, or BPCA/PREA, have resulted in over 400 drug labels. Be sure to check out the speakers at this event sponsored by BIO.

SOCIAL MEDIA BRIEFING – A SUCCESSFUL TOOL FOR THE RARE DISEASE COMMUNITY

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Please join Inspire and the Biotechnology Industry Organization (BIO) in Washington, DC, on June 8, 2011, for a half-day seminar, “Collaborations through Social Media.” The free event will take place from 9:00 a.m. to noon EST at BIO’s headquarters, 1201 Maryland Ave, SW, Suite 900, in […]

BIO National Convention – Call out to Patient Groups – END OF DAY TODAY!!

The BIO International Convention has a tremendous tradition of connecting the Life Sciences Community of Stakeholders.  Each year, BIO brings more opportunities to the table for patient advocacy groups to attend this event, garner exposure for their organization, and enjoy the benefits of the week […]

More Than 400 Medicines in Development to Treat or Prevent Rare Diseases

A recent report released by PhRMA states that more drugs are currently in development for rare diseases than have been released in over 20 years since the Orphan Drug Act! The Pharmaceutical Research and Manufacturers of America (PhRMA) represents the country’s leading pharmaceutical research and […]

World Rare Disease Day Efforts Underway from Global Genes Project

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Global Genes Project volunteers working on multiple programs to build awareness and support World Rare Disease Day, Feb 28, 2011! Ever want to be part of something bigger?  Ever want to really feel like people are helping champion your cause.  Well. . . they are.   […]