Rare Disease Day 2010 Photo and Video Contest Winners


The winners of the 2010 EURORDIS/Rare Disease Day photo and video contest were announced.

What is the matter with Tarsila? An Undiagnosed Medical Disorder.


Tarsila is a year-and-a-half-old girl who suffers from an undiagnosed medical disorder. She cannot sit on her own or crawl, she still has no teeth, and she can only mutter some sounds.

She made it! Cindy Abbott reaches summit of Mt. Everest!

At the age of 48, after watching a documentary on TV, Cindy Abbot decided to start training for mountain climbing. Soon after, she was diagnosed with Wegener’s Granulomatosis. Last Wednesday, May 26, at the age of 51, Cindy finally reached summit of Mt. Everest.

Meet CheckOrphan


A big thanks to the folks at CheckOrphan for celebrating the birthday of blue jeans with us on May 20.  Read the CheckOrphan blog post “Happy birthday, Blue Jeans!”  – THURSDAY, MAY 20, 2010 Happy birthday, blue jeans! When you think about it, there is […]

'Denim Jean' Ribbon Unveiled To Promote Rare Disease Awareness

Campaign Brings Together Support from over 90 Corporations, Non-Profit Foundations, Research Institutions, Hospitals and Advocacy Groups; New Blue Jeans Denim Ribbon Unveiled To Promote Rare Disease Awareness DANA POINT, CA – February 1, 2010 – Hope – It’s In Our Genes.™ The Children’s Rare Disease […]