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Tag: childrens rare disease network

A total of 99 posts are filed under childrens rare disease network
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Rare Disease Network Connecting Patients with Experts Highlights Hospitals’ Knowledge Base
About 25 million people across the globe have a rare disease. One member of DreamIt Ventures’ healthcare startup accelerator DreamIt… Continue Reading
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Better Access to Patient Longitudinal Data Promises Greater Research Latitude
Patient longitudinal data which are collected over long periods of time reveal a more complete picture of many rare diseases than temporal… Continue Reading
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When Disaster Strikes, Are Your Health Records Electronic, Safe and Immediately Available?
by Dr. Martin H. Orens As a board certified emergency room physician, I am passionate about helping parents see the importance of having an… Continue Reading
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Rare Disease Registry Contest Underway – Deadline for Submissions is Sept 30th
The Sept. 30th CRDN/RemedyMD Video Contest Deadline is Almost Here! This summer, the CRDN announced a video contest to give away one free… Continue Reading
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Guest Blog Scientific American – Innovation in Medical Diagnositics Saves Lives
Innovation in Medical Diagnostics Saves Lives – a system that isn’t broken and doesn’t need fixing For over a century, the… Continue Reading
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‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
The RARE Project Announces Big Team Additions, Setting the Stage For Continued Success Thirty (30) million people in the US and 350 million… Continue Reading
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Rare Disease Research and Integrated Systems: 1+1=3
Rare Disease Research and Integrated Systems: 1+1=3 Rare disease data can be hard to come by…Really hard when there are fewer subjects to… Continue Reading