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Tag: childrens rare disease network

A total of 99 posts are filed under childrens rare disease network
the_hill.com
‘THE HILL’ Reports: Help children with rare diseases get the new medicines they need
Having a seriously ill child is always difficult and painful. It’s even more so when a child’s illness is one of the 7,000 rare diseases… Continue Reading
Nature.com Reports – Rare Disease Studies Seek Online Giving
The Global Genes Fund seeks online donations for conditions such as progeria, a rare disorder that causes accelerated aging. Those wanting… Continue Reading
RARE DISEASE TECHNOLOGY TRENDS – 'REGISTRIES', JOIN US JUNE 22
Advancements in Technology Help Rare Disease Research Researchers for rare diseases all need somewhere to digitally store their research… Continue Reading
National Nurses Week – Thank those that work to help our kids!
Every year from May 6th – 12th the American Nurses Association celebrates National Nurses Week, and the 2011 theme is “Nurses… Continue Reading
CBI ANNOUNCES PARTNERSHIP WITH CHILDREN’S RARE DISEASE NETWORK AND THE GLOBAL JEANS PROJECT
BOSTON, MA – The Center for Business Intelligence (CBI), a division of Advanstar Communications, is pleased to announce a partnership with… Continue Reading
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DNA Day – “Wear That You Care”
About National DNA Day National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of… Continue Reading
Dr._Christopher_Austin_NCGC_NIH
Wear That You Care Campaign Success at World Rare Disease Day 2011
It’s a Wrap – Rare Disease Day 2011. DANA POINT, Calif. – The 4th Annual World Rare Disease Day took place February 28, 2011 with a… Continue Reading

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