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Tag: children’s rare diseases

A total of 36 posts are filed under children’s rare diseases
CSUF_Fundraiser_Buffalo
Cal-State Fullerton Students Champion RARE Disease
We are a group of five seniors at Cal-State University, Fullerton studying Communications – Public Relations.  As part of our… Continue Reading
Charleston_Orwig
Partners for Humanity – Vote for Charleston | Orwig
Charleston| Orwig along with SeventhStreet Studios developed a creative ad through Partners for Humanity for the Global Genes Project.… Continue Reading
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Free Summer Conference for Young Adults Living with Metobolic/Genetic Conditions
The Face Forward is for young adults with rare genetic, metabolic, and mitochondrial conditions. The mission of the project is to develop… Continue Reading
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Batten Disease Awareness Weekend Bringing Hope for Children with a Fatal Disease—and No Cure in Sight
June 1, 2011 (Reynoldsburg, OH) – Batten Disease Support and Research Association (BDSRA) is holding its 3rd annual Batten Disease… Continue Reading
GLOBAL GENES PROJECT HOLDS INAUGURAL BOARD MEETING
Participants from all over the country converge on Southern California to lay the groundwork for the Global Genes Project’s continued… Continue Reading
Jenny Clark, Callie King-Guffey, Megan Leslie, Tayler Renshaw, Maddy Rasch, Andrea Loh, Alex Nicholson, Whitney Roline, Georgia Wetmore, Lauriene Madrigal, Emily Strombom, Kate Buss, Liz Martin, Elissa Minamishin, Kelley Murayama
Occidental College Soccer Team promotes the Global Genes Project Wear That You Care campaign
The Occidental College women’s soccer team located in Los Angeles, CA, came together to support the Global Genes Project and the blue… Continue Reading
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Global Genes Project and 46NYC Launch ‘Treat46le’ T-Shirt For Rare Disease Awareness
Treat46le T-shirt Honors Millions of Rare Disease Patients Living Without Hope 46NYC (www.46nyc.com) is helping raise awareness for an… Continue Reading

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