Cal-State Fullerton Students Champion RARE Disease

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We are a group of five seniors at Cal-State University, Fullerton studying Communications – Public Relations.  As part of our capstone Public Relations Management course, we were partnered with The R.A.R.E. Project (www.rareproject.org) to plan and implement a public relations campaign. Initially, we had little […]

Partners for Humanity – Vote for Charleston | Orwig

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Charleston| Orwig along with SeventhStreet Studios developed a creative ad through Partners for Humanity for the Global Genes Project.  The Global Genes Project promotes the needs of the rare disease community, engages the general public and encourages corporate support through our unifying symbol of hope: the […]

Free Summer Conference for Young Adults Living with Metobolic/Genetic Conditions

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The Face Forward is for young adults with rare genetic, metabolic, and mitochondrial conditions. The mission of the project is to develop leadership, advocacy and life skills, in order to achieve good health, positive behavior, socioeconomic success and civic engagement. It is for young adults […]

Batten Disease Awareness Weekend Bringing Hope for Children with a Fatal Disease—and No Cure in Sight

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June 1, 2011 (Reynoldsburg, OH) – Batten Disease Support and Research Association (BDSRA) is holding its 3rd annual Batten Disease Awareness Weekend, June 3-5, 2011 to bring recognition to a rare but devastating disease.Batten disease is a genetic neurological disease that brings an early death […]

GLOBAL GENES PROJECT HOLDS INAUGURAL BOARD MEETING

Participants from all over the country converge on Southern California to lay the groundwork for the Global Genes Project’s continued growth, and increased efforts impacting the rare disease community. The Global Genes Project hit a tipping point in early 2011, when it was clear that […]

Occidental College Soccer Team promotes the Global Genes Project Wear That You Care campaign

Jenny Clark, Callie King-Guffey, Megan Leslie, Tayler Renshaw, Maddy Rasch, Andrea Loh, Alex Nicholson, Whitney Roline, Georgia Wetmore, Lauriene Madrigal, Emily Strombom, Kate Buss, Liz Martin, Elissa Minamishin, Kelley Murayama

The Occidental College women’s soccer team located in Los Angeles, CA, came together to support the Global Genes Project and the blue jean ribbon campaign to support rare disease awareness.  The players set up posters throughout the school to promote their efforts as well as […]

Global Genes Project and 46NYC Launch ‘Treat46le’ T-Shirt For Rare Disease Awareness

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Treat46le T-shirt Honors Millions of Rare Disease Patients Living Without Hope 46NYC (www.46nyc.com) is helping raise awareness for an important cause – this time the drug development crisis facing the rare disease patient community worldwide. The New York-based clothing company has teamed up with the […]