Top Hospitals and Doctors Fail To Find Elevated Bilirubin Levels and Enlarged Spleen at Birth as Niemann Pick Type C disease

Chase is fighting for his life and battling against a fatal neurodegenerative disorder called Niemann Pick Type C

Chase was born on August 21, 2009, in Jacksonville Florida. He arrived a bit early via C-Section. At two days old, his bilirubin levels were elevated and a roller-coaster ride to diagnosis began for our family.  At first, Chase was misdiagnosed with Cholestatic Liver Disease [...]