From Our Affiliates

Tag: DISABILITY

A total of 7 posts are filed under DISABILITY
disableddept
New Resource for Disabled College Students
A new tool for college students with disabilities is now online. The We Connect Now website (http://weconnectnow.wordpress.com/) was created… Continue Reading
As an X-linked genetic disorder, Adrenoleukodystrophy is more likely to occur in men.
A Never-Ending Battle: ALD Causes Many Setbacks For This Mother Of Two
In 2004, I was told by my biological mother that my son would have a 50/50 chance of being diagnosed with Adrenoleukodystrophy. I asked the… Continue Reading
Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace
Online Knowledge Share Platform to Provide Valuable Information to Rare Disease Community Dana Point, Calif. (June 29, 2010) – Every… Continue Reading
Are vacations allowed when you've got a sick kid?
Prepare to be shocked, or at least to mildly “tsk tsk.”  For almost three years time, my husband and I did not leave the kids and go on… Continue Reading
Print
Searching for a Cure For Duchenne – Patient Perspective Podcast #1
In this first in a series of podcasts focused on rare disease patient advocates, we speak to Debra Miller, president and founder of Cure… Continue Reading
Collaboration is key in rare disease research!
KTVU-TV 2, the leading evening news in the San Francisco Bay Area, today reported on Addi and Cassi Hempel, identical twins affected by a… Continue Reading
Capitol_Building
A Tax-Free Savings Plan For Disabilities – ABLE Act Update
Legislation in Congress seeks to allow the disabled and their families to create tax-exempt savings accounts for future care-related… Continue Reading

Follow us on Twitter