From Our Affiliates


A total of 8 posts are filed under DISABILITY
Meet Cass.
The Employment Plan – Where Do You Start?
by Joan Friedlander   Meet Cass. Cass is one in a million, yet representative of so many people struggling to put their career back… Continue Reading
New Resource for Disabled College Students
A new tool for college students with disabilities is now online. The We Connect Now website ( was created… Continue Reading
As an X-linked genetic disorder, Adrenoleukodystrophy is more likely to occur in men.
A Never-Ending Battle: ALD Causes Many Setbacks For This Mother Of Two
In 2004, I was told by my biological mother that my son would have a 50/50 chance of being diagnosed with Adrenoleukodystrophy. I asked the… Continue Reading
Children's Rare Disease Network Partners With To Create Rarespace
Online Knowledge Share Platform to Provide Valuable Information to Rare Disease Community Dana Point, Calif. (June 29, 2010) – Every… Continue Reading
Are vacations allowed when you've got a sick kid?
Prepare to be shocked, or at least to mildly “tsk tsk.”  For almost three years time, my husband and I did not leave the kids and go on… Continue Reading
Searching for a Cure For Duchenne – Patient Perspective Podcast #1
In this first in a series of podcasts focused on rare disease patient advocates, we speak to Debra Miller, president and founder of Cure… Continue Reading
Collaboration is key in rare disease research!
KTVU-TV 2, the leading evening news in the San Francisco Bay Area, today reported on Addi and Cassi Hempel, identical twins affected by a… Continue Reading