From Our Affiliates

Tag: Duchenne

A total of 6 posts are filed under Duchenne
DuchenneDouble
Cure Duchenne & The Duchenne Therapy Network Partner to Provide Training to Physical Therapists and Families
Organizations partnering for the united goal of benefiting the community at large is a rare and wonderful thing. We’re thrilled to see… Continue Reading
Screen Shot 2014-03-07 at 2.34.02 PM
Urge the FDA to Say YES to Accelerated Approval For Therapies For Duchenne.
We urge the Food and Drug Administration (FDA) to use the Accelerated Approval pathway for approval and access to safe, effective therapies… Continue Reading
MDA logo_FMD
Patient Tools: MDA’s List of Neuromuscular Disease Descriptions
Below is a general overview of the characteristics of the neuromuscular diseases that affect children and teens. The disorders are grouped… Continue Reading
Eileen O'Brien, Siren Interactive's Director of Search & Innovation.  Eileen has more than 16 years of digital healthcare marketing experience and is considered an opinion leader on social media
The Importance of Patient Initiated Research and Virtual BioTechs
Sharonne N. Hayes, MD, from the Mayo Clinic, recently authored a blog, “The potential of patient initiated research in studying rare… Continue Reading
Print
Searching for a Cure For Duchenne – Patient Perspective Podcast #1
In this first in a series of podcasts focused on rare disease patient advocates, we speak to Debra Miller, president and founder of Cure… Continue Reading
Print
CureDuchenne Hopes FDA Will Accomodate New Class Of Muscular Dystrophy Drugs Upon Proof Of Safety
Seven years ago, we were a happy family with mom, dad and a beautiful 5 year old boy named Hawken.  We had noticed our son was unable to… Continue Reading