I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what better time to explore how uncomfortable the tea parties with the skeletons who live in my closet go […]
Global Genes Blog Editor Weighs in for HuffPo: How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness?
It’s (Not) All In Your Head: Ehlers-Danlos Patient Learns Childhood Quirks Were Warning Signs for Rare Disease
Lisa Auerbach cherishes the Hope bracelet she recently received. Lisa is battling Ehlers-Danlos Syndrome(EDS), a connective tissue disorder which affects every system in the body. Lisa’s symptoms include dislocating joints, Postural Orthestatic Tachycardia (POTS), severe headaches and pain. She will most likely need significant […]