From Our Affiliates

Tag: global genes

A total of 83 posts are filed under global genes
UK Genetic Disorders Leadership Symposium
Genetic Disorders UK and Global Genes Collaborate on the First Event for Leaders of Rare Genetic Disorder Charities and Support Groups
Global Genes, a leading rare disease patient advocacy organization based in the USA, has partnered with Genetic Disorders UK (GDUK), the UK… Continue Reading
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Dr. Ayesha Khalid Inspires with New Ted Talk”Why We Can’t Fix Our Healthcare System”
Global Genes is proud to have Dr. Ayesha Khalid as part of our Medical and Scientific Advisory Board. Khalid recently gave a Ted Talk on… Continue Reading
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Global Genes Partners with Genetic Disorders UK to Empower Individuals and Families affected by Rare Genetic Disorders Globally
There is great flux in all aspects of the lives of families affected by a rare genetic disorders in the UK. The NHS is undergoing major… Continue Reading
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New RARE Toolkit: Pediatric Palliative Care
Today Global Genes announces its newest educational toolkit on pediatric palliative care. This toolkit, created in partnership with the… Continue Reading
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Happy Thanksgiving from Global Genes
This year we’re grateful a lot– from the patients we support to the patrons that support us, from the treatments currently available to… Continue Reading
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Global Genes Announces Formation of Medical Scientific Advisory Board—Adds New Members to Board of Directors
ALISO VIEJO, Calif. — November 24, 2014 — Global Genes™ announced today the formation of an inaugural leadership team, the Medical and… Continue Reading
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Global Genes™ Launches RARE Daily, Innovative Online News Magazine
Global Genes’ RARE Blog has been reimagined to bring more opportunities for rare disease patients to learn and stay informed on important… Continue Reading