The Gift of Global Genes: Provide Hope to Families of Rare Disease This Holiday


New parents dream about watching their babies walk for the first time and saying their first word. They dream about clapping in the crowd as their children graduate high school, get accepted to college and find a job that fulfills them. They want their children […]

The Global Genes | Rare Project Named Top-Rated NonProfit 2013 by GreatNonProfits


GreatNonprofits is the leading developer of tools that allow people to find, review and share information about great– and perhaps not yet great– nonprofits and charities. Thanks to the reviews of the rare disease community, Global Genes was named a Top-Rated NonProfit for 2013 by […]

Behind the Mystery of Rare and Genetic Diseases: Lifetime Television

Tune in to The Balancing Act® on weekday mornings 7:00am ET/PT to watch “Behind the Mystery: Rare and Genetic Diseases”.

Our very own Nicole Boice, founder of the Global Genes | RARE Project, joined The Balancing Act on Lifetime Television to talk about how millions of Americans—one in ten—fall through the cracks of medical treatment because there is so little awareness or research funding the […]

Two Hearts Rock Aligns with Students to Assemble 5,000 Denim Ribbons

Two Hearts Rock

On Friday, November 9th, Kerry Hughes and Lori Butler of Two Hearts Rock joined District 95 students of Lake Zurich, Illinois, in assembling Denim Ribbons for an upcoming Rare Disease Awareness Campaign. Two Hearts Rock believes that “music creates unity,” and they strive to use this power […]

Faircraft Records/Universal Republic Recording artist Chris Mann and Singer/Songwriter Katrina Parker to Perform at Global Genes | R.A.R.E Project’s Tribute to Champions of Hope™ Benefit

Chris Mann, Nestor Serrano, Jason George and Katrina Parker

FOR IMMEDIATE RELEASE Actors Jason George, Nestor Serrano and Meagan Tandy will Serve as Celebrity Award Presenters; Henri Termeer, Former President and CEO of Genzyme, will Receive Lifetime Achievement Award DANA POINT, CA – August 30, 2012 – Global Genes | R.A.R.E. Project ( today […]

Global Genes | RARE Project Host Patient Advocacy Summit at the Balboa Bay Club on September 28, 2012


Join Us September 28, 2012 9am to 3pm Balboa Bay Club, Newport BeachCA   Global Genes | RARE Project will host the first annual Patient Advocacy Summit, where patient community participants can hear directly from and engage in dialogue on various topics to educate and inform.  […]

Global Genes and R.A.R.E. Project Announce Tribute to Champions of Hope™ Gala to Honor Rare and Genetic Disease Pioneers, Innovators and Advocates


Henri Termeer, Biotech Legend and former President and CEO of Genzyme, To Receive Lifetime Achievement Award; Nominations Now Being Accepted For Medical Care and Research & Science Award Categories DANA POINT, CA – June 27, 2012 – Global Genes ( and the R.A.R.E. Project are […]