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Tag: global genes

A total of 89 posts are filed under global genes
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April 1st Webinar: How to Discuss Genetic Disease with Your Loved One
There are currently about 7,000 rare diseases identified worldwide, and approximately 80 percent of these are caused by genetic changes. But… Continue Reading
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Rare Disease Takes Over Twitter: Chat Recaps
Global Genes was proud to participate in many Tweet Chats this week along with hundreds of other patients, caregivers, biopharma companies… Continue Reading
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Global Genes: White Paper, The Must-Have Collaborations for Successful Drug Development
The team at Global Genes is happy to present a new White Paper that was developed to expand the dialogue on this important topic, that first… Continue Reading
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OC Register: Aliso Viejo Nonprofit Shines on Rare Disease
After a decade of searching for a diagnosis to their children’s mysterious affliction, Ann Marie Jennison and husband Jeff finally have an… Continue Reading
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Before the Diagnosis: Celebrating World Rare Disease Day with Global Genes
Global Genes asks that you Wear That You Care this year on February 28th on World Rare Disease Day 2015. Learn more about how you can get… Continue Reading
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Global Genes™ Kicks Off #CareAboutRare Campaign for World Rare Disease Day 2015
ALISO VIEJO, Calif., Feb. 12, 2015–Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of… Continue Reading
UK Genetic Disorders Leadership Symposium
Genetic Disorders UK and Global Genes Collaborate on the First Event for Leaders of Rare Genetic Disorder Charities and Support Groups
Global Genes, a leading rare disease patient advocacy organization based in the USA, has partnered with Genetic Disorders UK (GDUK), the UK… Continue Reading