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Tag: global genes

A total of 71 posts are filed under global genes
GlobalGenesSixWordsContest
Can You Tell Your Rare Disease Story in Six Words? Enter and Win.
“For sale: baby shoes, never worn.” It was a six word story that Ernest Hemingway wrote that changed the idea that a great story… Continue Reading
patient information tracking
Accurate Diagnosis of Rare Diseases Remains Difficult Despite Strong Physician Interest
Research Published in The Journal of Rare Disorders Highlights Need for Improved Physician Education and Referral Programs Patients living… Continue Reading
GGP-Rare_logo-v4_tagline_small
Global Genes Partners With SWAN USA To Help Undiagnosed Rare Disease Patients Seek A Medical Diagnosis Through Free Whole Exome Sequencing Program
GLOBAL GENES PARTNERS WITH SWAN USA TO HELP UNDIAGNOSED RARE DISEASE PATIENTS SEEK A MEDICAL DIAGNOSIS THROUGH FREE WHOLE EXOME SEQUENCING… Continue Reading
Hope
The Gift of Global Genes: Provide Hope to Families of Rare Disease This Holiday
New parents dream about watching their babies walk for the first time and saying their first word. They dream about clapping in the crowd as… Continue Reading
GreatNonProfits
The Global Genes | Rare Project Named Top-Rated NonProfit 2013 by GreatNonProfits
GreatNonprofits is the leading developer of tools that allow people to find, review and share information about great– and perhaps not… Continue Reading
Tune in to The Balancing Act® on weekday mornings 7:00am ET/PT to watch “Behind the Mystery: Rare and Genetic Diseases”.
Behind the Mystery of Rare and Genetic Diseases: Lifetime Television
Our very own Nicole Boice, founder of the Global Genes | RARE Project, joined The Balancing Act on Lifetime Television to talk about how… Continue Reading
Two Hearts Rock
Two Hearts Rock Aligns with Students to Assemble 5,000 Denim Ribbons
On Friday, November 9th, Kerry Hughes and Lori Butler of Two Hearts Rock joined District 95 students of Lake Zurich, Illinois, in assembling… Continue Reading