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Tag: global genes

A total of 79 posts are filed under global genes
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Hiking Mt. Kilaminjaro to Raise Rare Disease Awareness
Hikers take on a big challenge to raise awareness and climb for a cause! On July 29th, 2011, 9 trekkers set out to reach Uhuru Peak – the… Continue Reading
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Genzyme Announces Winners of Patient Advocacy Leadership Award Grants
CAMBRIDGE, Mass., Aug 17, 2011 (BUSINESS WIRE) — Genzyme, a Sanofi company, today announced the first recipients of the Genzyme Patient… Continue Reading
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Rare Disease Research and Integrated Systems: 1+1=3
Rare Disease Research and Integrated Systems: 1+1=3 Rare disease data can be hard to come by…Really hard when there are fewer subjects to… Continue Reading
Bruins forward Milan Lucic and Sam. Milan Lucic’s family is from Serbia. He and several family members currently live in Canada.
Boston Bruins Players Record Public Service Announcements to Help Find Children with Progeria in Europe
In an exciting expansion of PRF’s global campaign to find all children with Progeria, The Progeria Research Foundation has joined forces… Continue Reading
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Nominations Open – 2012 College Football Rare Disease Champion Award
The honor of the “Uplifting Athletes Rare Disease Champion” is presented annually to recognize a leader in the world of college football… Continue Reading
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Rare Disease Registries 101
Disease Registries 101…is that when two diseases get married and pick out house wares? The term registry conjures different meanings to… Continue Reading
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LOOK WHO’S ROCKIN’ IT FOR RARE DISEASE!
The music was loud and the crowd made noise for an important cause.  “Rock Rare Disease”, a music benefit to raise awareness for Rare… Continue Reading