From Our Affiliates

Tag: global genes

A total of 87 posts are filed under global genes
Health and Human Services Secretary Adopts New Recommendation on Newborn Screening
Health and Human Services Secretary Adopts New Recommendation on Newborn Screening Recommended Uniform Screening Panel now to include… Continue Reading
Electronic_Health_Records_
When Disaster Strikes, Are Your Health Records Electronic, Safe and Immediately Available?
by Dr. Martin H. Orens As a board certified emergency room physician, I am passionate about helping parents see the importance of having an… Continue Reading
Sanfilippo_Foundation_ for_Children
A RARE DISEASE PATIENT PERSPECTIVE – Roy Zeighami
A Rare Disease Patient Perspective I would like to use this blog post to explain why the rare disease community is different, and why it… Continue Reading
REMEDYMD INFORMATICS LOGO
Rare Disease Registry Contest Underway – Deadline for Submissions is Sept 30th
The Sept. 30th CRDN/RemedyMD Video Contest Deadline is Almost Here! This summer, the CRDN announced a video contest to give away one free… Continue Reading
Charcot_Marie_Tooth_Association_Rare_Disease
Charcot-Marie-Tooth Awareness Month Draws Attention to Little Known, But Widespread Disease
Nationwide and Global Events Scheduled Throughout September 2011 to support Charcot-Marie-Tooth disorder A month dedicated to one of the… Continue Reading
Rare_Project_Team_Board
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
The RARE Project Announces Big Team Additions, Setting the Stage For Continued Success Thirty (30) million people in the US and 350 million… Continue Reading
Spinal_Muscular_Atrophy_SMA
August is Spinal Muscular Atrophy Awareness Month
Spinal muscular atrophy (SMA) is the leading genetic cause of death in babies under the age of two.  It affects families of all ethnic… Continue Reading