
My name is Tamara-Lee. When my husband and I found out we were expecting a baby, it came as a total shock as my husband had recently underwent surgery for a vasectomy. During my entire pregnancy, I had a Hematoma on my uterus. Our beautiful [...]
Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions

My name is Tamara-Lee. When my husband and I found out we were expecting a baby, it came as a total shock as my husband had recently underwent surgery for a vasectomy. During my entire pregnancy, I had a Hematoma on my uterus. Our beautiful [...]

Meet Erin. She is eight years old and was diagnosed at age three with M-CMTC macrocephaly-cutis marmorata telangiectatica congenita syndrome or Macrocephaly-capillary malformation (M-CM), a multiple malformation syndrome causing body and head overgrowth and abnormalities of the skin, vascular system, brain and limbs. The disorder has recently (June [...]
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