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Tag: howard liebers

A total of 15 posts are filed under howard liebers
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50/50 and Neurofibrosarcoma
50/50, a film starring Seth Rogen and Joseph Gordon-Levitt based on the true story of Will Reiser who is a survivor from a battle against a… Continue Reading
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The CLASS Act and Caregiver Village
The White House and the US Department of Health and Human Services pulled the plug on the Community Living Assistance Services and Supports… Continue Reading
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The Yellow Bird Project for #RareDisease / @MarbleRoad @YBP by @SarahGrothjan
When someone asks me who I am or what I do, I typically default to any combination of journalist, student, writer, intern. However, there is… Continue Reading
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NeuroDetour: A Conversation with Melanie Miller
The Flammable Heart Exhibition is coming up Aug 7-13 for National Health Center Week. This post is a brief but candid look at the world of… Continue Reading
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The Flammable Heart Exhibition
The Charles August Long Undiagnosed Diseases Act of 2011; the battle to save community health center funding and keep Medicaid intact; The… Continue Reading
Rare Disease Day 2011: Research, Action and Impact
Updates from MarbleRoad for Rare Disease Day 2011, including events, publications, and a quick shout-out for those fighting rare kidney… Continue Reading
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Statement from Howard Liebers on Proposed Budget Cuts For Rare Diseases
A statement from Howard Liebers on the House Appropriations Committee's proposed budget cuts, particularly its impact on community health… Continue Reading