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Tag: Hunter syndrome

A total of 19 posts are filed under Hunter syndrome
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ArmaGen Announces Collaboration with Shire to Develop Treatment for Hunter Syndrome
ArmaGen, a privately held biotechnology company focused on developing revolutionary therapies to treat severe neurological disorders,… Continue Reading
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Hunter Syndrome Patient, Parents Meet with Health Minister to Discuss Rare Disease Treatment
The parents of 12-year-old Arian Chowdhury, who suffers from a rare genetic disease, plan to meet union Health Minister Harsh Vardhan to… Continue Reading
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Zumbathon® Charity Event for Hunter Syndrome on March 1st in Texas
Company Hunter Syndrome Foundation Email admin@huntersyndromefoundation.org Location of Event Prosper, TX Relevant Website… Continue Reading
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Dirk Nowitzki to Donate to Rare Disease Research
Dirk Nowitzki will donate $20 for every two-pointer the Dallas Mavericks make for a month to research of a rare disease, he said recently.… Continue Reading
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Health Policy Forum: Rare Diseases, Patients, Care and Cures: 12/11/13, New Jersey
 Health Policy Forum: Rare Diseases, Patients, Care and Cures Will a treatment be developed in time to extend the lives of young Jason and… Continue Reading
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What Are You Grateful For: Our Rare Disease Community
We took to our Facebook to ask: What are you most grateful for this year? Unlike many families who may struggle with their own set of… Continue Reading
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Patient with Hunter’s Disease Seeks to Help Kids Understand Those with Disabilities
“I don’t want kids to have to go through the negatives that I had to go through growing up,” said Dutcher. Speaking to schools,… Continue Reading

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