Idiopathic pulmonary fibrosis
Synonyms: IPF
An interstitial lung disease with a poor prognosis that is characterized by the progressive formation of scar tissue within the lungs in the absence of any known cause.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2024
Newly diagnosed with
Idiopathic pulmonary fibrosis?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
The Telomere Project
The Telomere Project (TTP) is dedicated to funding lifesaving efforts for those affected by telomere syndromes (TS), in particular, those which result in shortened telomeres or low telomere promotion.
Clinical Trials
For a list of clinical trials in this disease area, please click here.