The Guardian: Rare Genetic Disorders and Five Positive Steps for Parents

Caring for a child with a genetic disorder is tough but can be rewarding. Picture posed by models.

Charity Genetic Disorders UK outlines five of the most important measures to take when your child has been recently diagnosed: It Is Not Your Fault You did not cause or will this upon your child. A genetic disorder does not mean the end of their world or […]

Jeans 4 Genes Day in Honor of Levi Ormeroid – Wisconsin

Levi’s Life, Love & Laughter

Event Date:  February 28, 2013 Organization:  Levi’s Life, Love & Laughter Location:  Eisenhower High School and West High School, New Berlin, Wisconsin Wear Purple & Jeans 4 Levi on Rare Disease Day!  Levi Ormeroid has a rare genetic disease called Sanfilippo Syndrome (aka, MPS III). Staff […]

Mitochondrial Disease: Jeans for Genes


Raising Awareness for Rare Disease Day and Mitochondrial Disease Many of us struggle with not knowing how we can make an impact on Rare Disease.  Whether we are faced with the day-to-day difficulties of a rare disease itself, or we are passerby’s watching others’ demanding fight […]

Partners for Humanity – Vote for Charleston | Orwig


Charleston| Orwig along with SeventhStreet Studios developed a creative ad through Partners for Humanity for the Global Genes Project.  The Global Genes Project promotes the needs of the rare disease community, engages the general public and encourages corporate support through our unifying symbol of hope: the […]

Texas Christian Univeristy and Buffalo Jeans Unite to Support Rare Disease Community

TCU Sororities 'Wear That They Care' Supporting Rare Diseases

Buffalo Jeans Brand Ambassador, Meghan Chamberlin dons Buffalo Jeans, showing support for Global Genes Project and those affected by rare diseases. Meghan Chamberlin, was chosen as one of Buffalo Jeans brand Ambassadors with the goal of promoting the Buffalo brand and their products while simultaneously […]