Mom Finds Baby Scarlett Has Holes and Pits on Body and Recieves Branchial-Oto-Renal Syndrome (BOR) Diagnosis

Scarlett Grace is fighting Branchio Oto Renal Syndrome and not giving up hope

After her birth, Scarlett was home from the hospital less than 12 hours before we brought her back due to her lack of feeding and a sense that ‘something was not right’. She was immediately transferred by ambulance to a children’s hospital as she was […]

Christian Billingsley – Atypical Hemolytic Uremic Syndrome (aHUS)

Atypical_Hemolytic_Uremic_Syndrome_aHUS_Christian Billingsley

On February 7, 2012,  WWL-TV, the CBS affiliate in New Orleans, reported on Christian Billingsley, a 17-year old boy diagnosed with atypical hemolytic uremic syndrome (aHUS) at 3 months of age. Online Story Just Keep Him Alive Until Medical Science Catches Up (click on title/link […]

CNN Health – Mom claims in viral blog that disabled child denied transplant


(CNN) — Can a patient be rejected for a kidney transplant based on a developmental disability? A New Jersey mother alleges in her blog that this happened to her 3-year-old daughter, and it has sparked an Internet uproar. Whether a person with a mental disability […]