Deaf & Blind Adventurer with Usher’s Syndrome to Receive Top Honor at RARE Event – Meet Bill Barkeley

Bill Barkeley is a true RARE Champion.  Bill is deaf-blind and battling Usher's Syndrome.  He also runs marathons!

Global Genes | R.A.R.E., during its 1st Annual RARE Tribute to Champions, will be honoring Bill Barkeley for his incredible efforts in support of Usher’s Syndrome, but also for his work to raise awareness, funds and provide inspiration to everyone with a rare, genetic or [...]

Hiking Mt. Kilaminjaro to Raise Rare Disease Awareness

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Hikers take on a big challenge to raise awareness and climb for a cause! On July 29th, 2011, 9 trekkers set out to reach Uhuru Peak – the highest point in Africa at 19,341 feet and the top of Mt. Kilimanjaro in Tanzania.  The group [...]