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Tag: Neurodegenerative Disorders

A total of 4 posts are filed under Neurodegenerative Disorders
Spousal_Caregiving_Advice
The Spousal Caregiver: More on Crying
In my last blog, I wrote that a good cry helped to dissipate the mental overload I was suffering. As a caregiver, I have learned the… Continue Reading
rare-neurodegenerative-disease
6-Year-Old Louisiana Boy With a Rare Neurodegenerative Disease Searches For Hope
Just 30 seconds of your time can change someone’s life. All it requires is for you to click a button and this will make little… Continue Reading
Alex and his mother show off their bracelets.
Hope Bracelet Symbolizes an Intertwined Network of Support During a Long Journey, Seeking a Diagnosis for Alex
After more than two years of extensive testing, Alex is still undiagnosed for a progressive neurodegenerative disease that slowly over the… Continue Reading
Sanford_CoRDS-Rare_Disease
Paola’s Life with Multiple System Atrophy (MSA)
Last week I went back to high school. My friend and co-worker, Paola Vermeer, a scientist studying head and neck cancer at Sanford… Continue Reading