The Spousal Caregiver: More on Crying


In my last blog, I wrote that a good cry helped to dissipate the mental overload I was suffering. As a caregiver, I have learned the therapeutic effects of crying. Growing up, I was taught that crying is bad, that we shouldn’t cry, and certainly […]

6-Year-Old Louisiana Boy With a Rare Neurodegenerative Disease Searches For Hope


Just 30 seconds of your time can change someone’s life. All it requires is for you to click a button and this will make little Alexander Moses’s life better. Known as ‘Xan’ by his siblings, the six-year-old is dying from a rare degenerative brain disease […]

Hope Bracelet Symbolizes an Intertwined Network of Support During a Long Journey, Seeking a Diagnosis for Alex

Alex and his mother show off their bracelets.

After more than two years of extensive testing, Alex is still undiagnosed for a progressive neurodegenerative disease that slowly over the course of the past 15 months has taken away Alex’s abilities to walk, write, talk, sit, feed himself and even to play and build with […]

Paola’s Life with Multiple System Atrophy (MSA)


Last week I went back to high school. My friend and co-worker, Paola Vermeer, a scientist studying head and neck cancer at Sanford Research, was presenting to junior high and high school students during their school assembly. This was not just any presentation. Paola, or Pay, […]