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Tag: Non-Profit

A total of 9 posts are filed under Non-Profit
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Waves of Impact – Making a Difference One Wave At A Time
Sun, Sand, Surf and Sam!  Several years ago, I had seen news stories about surf camps for children with autism. I even researched them on… Continue Reading
Families look to orphan drug development at University of Minnesota
Orphan diseases affect 25 million people in the United States. By Taylor Selcke, MN Daily.com For Michael Zimanske, years of holidays and… Continue Reading
National Institutes of Health news that caught my eye this week.
Here are a few NIH related items that Children’s Rare Disease Network folks might find interesting. 1. Share your health experiences… Continue Reading
Save the Date! Conferences of interest to parent advocates!
Here are some upcoming conferences that parent advocates and advocacy groups might be interested in: Gov 2.0 Expo in Washington, DC on… Continue Reading
Nominate Your Rock Star of Science!
Geoffrey Beene Gives Back®’s hip new campaign, “Rock Stars of Science” (a.k.a Rock S.O.S) is making its mark, and The Children’s… Continue Reading
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A Rare Disease Thriller?
If you like thrillers, you’ll love this article. If you like thrillers within thrillers, you’ll like it even more:… Continue Reading
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Searching for a Cure For Duchenne – Patient Perspective Podcast #1
In this first in a series of podcasts focused on rare disease patient advocates, we speak to Debra Miller, president and founder of Cure… Continue Reading