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Tag: NORD

A total of 35 posts are filed under NORD
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FMD Chat Connects With RareConnect
Those affected by fibromuscular dysplasia around the world now have a new option through which to interact with one another as the result of… Continue Reading
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The Grassroots Movement Behind Ultra and Fast: Join the Movement!
A Guest Blog by Julia Jenkins: Director of Government Relations, EveryLife Foundation The Grassroots Movement Behind ULTRA-FAST & How you… Continue Reading
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It’s a Wrap – World RARE Disease Day 2012 Success
The 5th Annual World Rare Disease Day took place February 29, 2012, with a fanfare of activities worldwide!  Sponsoring organizations like… Continue Reading
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February 29, 2012 – A Celebration of Unity
The Month of February During the month of February,  much of the American population will be celebrating historical events, special… Continue Reading
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RARE DISEASE DAY EVENTS 2012
Looking for a way to participate in Rare Disease Day Events? Don’t miss these Rare Disease Day events in DC! Monday, February 27,… Continue Reading
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Relapsing Polychondritis – My Chances of Winning The Lottery Are Better
I am a 43 year old woman with Relapsing Polychondritis. 1 in 3.5 Million people are diagnosed with this disease. My favorite saying is,… Continue Reading
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World RARE Disease Day at National Institutes of Health
On February 29, 2012, the National Institutes of Health (NIH) will celebrate the fifth annual Rare Disease Day with a day-long celebration… Continue Reading