From Our Affiliates

Tag: _Policy

A total of 5 posts are filed under _Policy
everydaylifefoundation
Rare Disease White Paper Open for Public Comment
By EveryLife Foundation for Rare Diseases NOVATO, CALIF., JUNE 25, 2013 — /PRNewswire-USNewswire/ — The EveryLife Foundation for… Continue Reading
Free-Medicine
Ukraine to Provide Free Medicine to Rare Disease Patients
KIEV, March 12 (Xinhua) — The Ukrainian government vowed to fight rare diseases by providing free medicines to patients starting from… Continue Reading
PDUFA_Fast_Act_Creating_Hope
PDUFA Update and Accelerated Approval Program For Rare Diseases
We’re continuing to work on improving PDUFA to allow the FDA additional authority to include rare diseases in the Accelerated Approval… Continue Reading
RDLA is hosting an Advocates Luncheon & Conference Call on September 12, 2012.  RSVP is required for attendance.
RARE Disease Lobby Day – February 28 – Washington, DC
RDLA is partnering with the EveryLife Foundation for Rare Diseases, RARE Project, Sarcoma Foundation of America, Darlington House and… Continue Reading
New impetus for the U.S. Orphan Drug Act
The United States Orphan Drug Act (US ODA) was passed in 1983, as way to stimulate the development of new therapies for rare diseases.… Continue Reading