From Our Affiliates

Tag: public awareness

A total of 23 posts are filed under public awareness
upliftingathletes
Lift For Life: Gamecock Football Team to Help Teammate, Others with Pelizaeus Merzbacher
COLUMBIA – A rare disease is one that affects less than 200,000 Americans at any given time. Pelizaeus Merzbacher is one of the… Continue Reading
WSA_stack_logo_pms
May is Williams Syndrome Awareness Month!
In 2010, the Williams Syndrome Association designated the first full week in May as “Williams Syndrome Awareness Week.” In the years… Continue Reading
IMG_3068
The Fight to be on Top – The Physical and Mental Challenge Against Rare Disease
I get asked all the time why I am so passionate about RARE Disease.  I get asked even more why I have volunteered for the last 8 years for… Continue Reading
rddch
February 29, 2012 – A Celebration of Unity
The Month of February During the month of February,  much of the American population will be celebrating historical events, special… Continue Reading
June.Cotter.2
Relapsing Polychondritis – My Chances of Winning The Lottery Are Better
I am a 43 year old woman with Relapsing Polychondritis. 1 in 3.5 Million people are diagnosed with this disease. My favorite saying is,… Continue Reading
RDLA is hosting an Advocates Luncheon & Conference Call on September 12, 2012.  RSVP is required for attendance.
RARE Disease Lobby Day – February 28 – Washington, DC
RDLA is partnering with the EveryLife Foundation for Rare Diseases, RARE Project, Sarcoma Foundation of America, Darlington House and… Continue Reading
original_228337_5594107695_685987695_165137_5935_n
Shakes and Stones — Life with Cystinuria and CIDP
Hi, my name is Andy. I was born in Watford in the UK back in 1975.  In 1994, I moved to Australia to attend University.  This is also the… Continue Reading