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Tag: RARE Blog

A total of 62 posts are filed under RARE Blog
National Nurses Week – Thank those that work to help our kids!
Every year from May 6th – 12th the American Nurses Association celebrates National Nurses Week, and the 2011 theme is “Nurses… Continue Reading
MOVING GENE THERAPY INTO HIGH GEAR – Innovations from Children's Hospital Boston
Gene therapy, still experimental but beginning to enter the clinic, attempts to utilize advanced molecular methods to treat and even reverse… Continue Reading
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Donate or Sign up to recieve your 7,000 Bracelets for Hope™
7,000 Bracelets for Hope Continues throughout 2012 The 7,000 Bracelets of Hope campaign has already inspired hundreds of bracelet designers… Continue Reading
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San Francisco Giants to host Rare Disease Fundraiser for MPS IV – with YouTube sensation Keenan Cahill!
No Question, Brian Wilson and Cody Ross are truly dynamite!!! Check out this article and video and pass it on!… Continue Reading
BIO National Convention – Call out to Patient Groups – END OF DAY TODAY!!
The BIO International Convention has a tremendous tradition of connecting the Life Sciences Community of Stakeholders.  Each year, BIO… Continue Reading
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DNA Day – “Wear That You Care”
About National DNA Day National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of… Continue Reading
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RARE Artist Art Contest Winners Announced
This year’s contest produced another amazing collection of beautiful artistic expression. We received many incredible and moving works… Continue Reading