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Tag: rare diseases

A total of 20 posts are filed under rare diseases
Genzyme is committed to discovering and delivering transformative therapies for patients with rare and special unmet medical needs, providing hope where there was none before.
Genzyme Announces Winners of 2012 Patient Advocacy Leadership Awards
Organization: Berry & Company PR on Behalf of Genzyme Submitted by: Monique Reuben CAMBRIDGE, Mass. – Genzyme, a Sanofi company (EURONEXT:… Continue Reading
Blue Inspired Bracelet for Hope By Fresh Baked Designs
Jewelry Designer Lynda Carson of Fresh Baked Designs Donates Bracelets To Families Affected By Rare Diseases
Thanks to Lynda Carson of Fresh Baked Designs for donating another beautiful bracelet to the 7000 Bracelets for Hope program. As a retired… Continue Reading
Help the Cure JM Foundation win a $250,000 Chase Community Giving Research Grant
Juvenile Myositis and Rett Syndrome Foundations Team Up To Ask For Votes To Win Top Chase Community Giving Grant
A minute of your time means a lifetime to kids with Juvenile Myositis and Rett Syndrome! Cure JM Foundation & Rett Syndrome Research Trust… Continue Reading
Holly suffers from Classical Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia
Ehlers-Danlos Syndrome Misdiagnosed In Holly As “Growing Pains” From Playing Too Many Sports
My name is Holly and I started having problems with my hip when I was 17 years old. My GP said that it was “growing pains” and… Continue Reading
Rare Hands Filled With Hope
Rare Hands Filled With Hope
In this picture, you will see hands from rare patients suffering from Scleroderma, Raynaud’s, Sjogren’s, Psoriatic Arthritis,… Continue Reading
NMNAT1-gavin
Whole Exome Sequencing Identifies Mystery Gene in 3 year old Gavin Stevens
Gavin Stevens – age 3, was born with Leber’s Congenital Amaurosis (LCA).   LCA is a rare orphan disease that affects 3,000… Continue Reading
Alexandra Maxwell is a freelance writer with a particular interest in the medical uses of cord blood.
Stem Cells Derived From Umbilical Cord Banking Have Great Potential to Treat Rare Diseases
Learn the facts about umbilical cord blood banking Umbilical cord blood banking involves harvesting the blood from a newborn’s… Continue Reading

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