I Have a Monster Called RSD–But RSD Doesn’t Have Me!

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In 2000, at the age of 13, I was diagnosed with a monster: RSD. Reflex sympathetic dystrophy (RSD) is characterized by a group of symptoms including pain (often “burning” type), tenderness, and swelling of an extremity associated with varying degrees of sweating, warmth and/or coolness, […]

Reflex Sympathetic Dystrophy (RSD) and Complex Regional Pain Syndrome (CRPS) Are Debilitating For Young Tiffany

Tiffany suffers severe painful symptoms from Reflex Sympathetic Dystrophy (RSD) and Complex Regional Pain Syndrome (CRPS)

My name is Tiffany and I am 23 years old. For the past 10 years, I have been fighting a battle of chronic pain called Reflex Sympathetic Dystrophy (RSD) and Complex Regional Pain Syndrome (CRPS), or shortened to RSD/CRPS. Reflex sympathetic dystrophy is a clinical syndrome […]

Reflex Sympathetic Dystrophy (RSD): Diagnosis Difficult

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I have Reflex Sympathetic Dystrophy (RSD), a rare disorder of the sympathetic nervous system, which I got in a very “rare” way.  In a one-in-a-million chance, I received RSD by an IV in 2001.  I now have had to have my ovaries, gallbladder, and appendix […]

NeuroDetour: A Conversation with Melanie Miller

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The Flammable Heart Exhibition is coming up Aug 7-13 for National Health Center Week. This post is a brief but candid look at the world of complex illness, and how MarbleRoad is trying to find creative ways to help people in need.