Logan Pacl, Living with Sanfilippo Syndrome

When Logan was diagnosed, we were told there was nothing we could do: there was no treatment or cure. But at only six years old, he has already had multiple surgeries and a cord blood stem cell transplant to help make his life easier.

My son, Logan, has Sanfilippo syndrome, a rare disease that could take his life before he turns 20. Logan loves playing at the park and watching Wow! Wow! Wubbzy! on Nick Jr. He is only six years old and has already had multiple surgeries and a […]

Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome

Team_SanFilippo_Foundation

Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome (RARE Project – Dana Point, CA) Rare Disease affects 350 million people worldwide, consisting of 7,000+ identified diseases and disorders.  Currently less than 5% of all rare diseases have any […]