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Tag: sanfilippo for children

A total of 2 posts are filed under sanfilippo for children
When Logan was diagnosed, we were told there was nothing we could do: there was no treatment or cure. But at only six years old, he has already had multiple surgeries and a cord blood stem cell transplant to help make his life easier.
Logan Pacl, Living with Sanfilippo Syndrome
My son, Logan, has Sanfilippo syndrome, a rare disease that could take his life before he turns 20. Logan loves playing at the park and… Continue Reading
Team_SanFilippo_Foundation
Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome
Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome (RARE Project – Dana Point,… Continue Reading

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