Last week I did a blog on seizure prevention, so to follow up with that I felt it would be good to do a blog on a couple options that are considered more reactionary than preventative. Why? Because both of these options give you, as [...]
How Can You Prevent a Seizure From Happening?
May 22, 2013 by Leave a Comment
Our first post gave information on the definition of epilepsy and “What To Do If Someone Has a Seizure,” so next you may be wondering can it be prevented? At present, the only way of preventing epilepsy is by reducing risks from things that damage [...]
What is Epilepsy? And Seizure First Aid
May 16, 2013 by Leave a Comment
More than three million people in the United States suffer from epilepsy at an estimated cost of 15.5 billion annually. In the United States, more than 300,000 people with epilepsy are under the age of 14 and more than 500,000 are over the age of 65. [...]
Family First Aid for Seizures: A Mom Prepares for Her Son’s Third Birthday
April 24, 2013 by 2 Comments
Finnan’s going to be three years old in less than two weeks, which in rare genetic disease time is pretty far off. Using the future tense when referring to Finnan is not something I like to do. I’m just happy if he wakes up each [...]
Girl Scout, 7, with Pituitary Dwarfism and Epilepsy Sells More Than 1,500 Boxes of Cookies
March 25, 2013 by Leave a Comment
Taylor Godwin, seven years old, is one cookie who doesn’t crumble. The Girl Scout, battling pituitary dwarfism and epilepsy, is the smallest in her troop but has sold the largest number of cookies. She’s already peddled more than 1,500 boxes — 1,275 of which got [...]
140 Seizures A Day Leads To Periventricular Nodule Heterotopia (PNH) Diagnosis In Faith
September 9, 2012 by Leave a Comment
My name is Lisa, and my daughter Faith Autumn Tremblay was born on Valentine’s Day 2003. She was diagnosed with Periventricular Nodule Heterotopia (PNH) in June 2005. At the time of her diagnosis, she was having over 140 seizures per day. Until three weeks prior [...]
Landon Can’t Process Methonine, Which is Found in Protein; Special Diet Controls Homocystinuria
September 8, 2012 by Leave a Comment
My name is Rachel, and my son Landon has Homocystinuria, a rare genetic metabolic disease in which he can not process the amino acid, Methonine. which is found in protein. This disease can cause developmental delays, stroke, seizures, heart attack, blood clots, several physical deformities [...]
