From Our Affiliates

Tag: Sharonne Hayes

A total of 2 posts are filed under Sharonne Hayes
Greyson's_Law_Krabbe_Disease
The Power of Rare Disease Patients – From Passing Laws To Starting BioTechs
Thanks to the Pew Internet Foundation, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families)… Continue Reading
Social_Network_Research_Disease
Wall Street Journal Reports – When Patients Using Social Networks To Spur Research
Using Social Networks To Spur Research for Rare Diseases; Mayo Clinic Signs On When Katherine Leon began feeling crushing chest pain six… Continue Reading

Follow us on Twitter