Shire Announces the 2014 Shire ACES Scholarship Program!

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Shire is proud to announce the 2014 Shire ACES Scholarship Program! This scholarship program is continuing last year’s success in recognizing academic achievement in the rare disease community. Recent high school graduates, high school seniors expected to graduate by July 1, 2014, or GED credential recipients who have […]

World Rare Disease Day 2014 Planning Webinar: Tomorrow at 11:00AM (PT)


Global Genes will be hosting a series of free webinars in 2013 geared towards educating and empowering our RARE community. World Rare Disease Day 2014 Planning Webinar: Ideas and Suggestions to Host Your Own World Rare Disease Day Event December 11, 2013 – 11:00 am PT […]

Why Rare Diseases are Big Pharma’s Latest Obsession


The global pharmaceutical industry has long leaned on blockbuster drugs for common ailments like high cholesterol, arthritis and erectile dysfunction for the bulk of its profits. But the looming expiry of patents in the US on many of these drugs, along with slowing approval rates for new mass market drugs in development, […]

Shire to Pay $4.2 Billion for Rare Disease Firm ViroPharma

A researcher works at the Cytos laboratory in Schlieren.

London-listed Shire is buying ViroPharma for $4.2 billion, its biggest deal yet to strengthen its portfolio of lucrative drugs to treat rare diseases, which are attracting increasing attention from drug companies as patents expire on their older treatments. Several companies including France’s Sanofi, according to reports, […]

Reminder: Rare Registries Webinar Today


Just a reminder that Global Genes | RARE Project will be hosting a webinar on Understanding Rare Disease Registries today. Have you registered yet? Part 2, October 23, 2013   11:00 am Pacific Time Register today – space is limited! Part Two will include a […]

RARE Webinar: Understanding Registries, Part 2


Global Genes | RARE Project and a host of partners are proud to continue its RARE Webinar Series, a series of educational webcasts this year on relevant and timely topics that are of interest to the RARE community. Our upcoming webinar will focus on Understanding Rare Disease […]

Rare Disease Congressional Caucus Briefing Co-Hosted by Shire and RDLA


Shire co-hosted a Rare Disease Congressional Caucus briefing on Thursday, September 12 in conjunction with Rare Disease Legislative Advocates. Approximately 50 people attended the event. John Crowley, parent advocate and CEO of Amicus Therapeutics, served as moderator. An overview of the speakers and their remarks […]