Synageva BioPharma Joins NORD, Eurordis and Global Genes Project in Support of Rare Disease Day 2013

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Synageva BioPharma Corp. (Synageva), a clinical stage biopharmaceutical company developing therapeutic products for rare diseases, joins the National Organization for Rare Disorders (NORD), the European Organisation for Rare Diseases (EURORDIS), the Global Genes Project, and others around the world in observing Rare Disease Day. On […]

Faircraft Records/Universal Republic Recording artist Chris Mann and Singer/Songwriter Katrina Parker to Perform at Global Genes | R.A.R.E Project’s Tribute to Champions of Hope™ Benefit

Chris Mann, Nestor Serrano, Jason George and Katrina Parker

FOR IMMEDIATE RELEASE Actors Jason George, Nestor Serrano and Meagan Tandy will Serve as Celebrity Award Presenters; Henri Termeer, Former President and CEO of Genzyme, will Receive Lifetime Achievement Award DANA POINT, CA – August 30, 2012 – Global Genes | R.A.R.E. Project (www.globalgenes.org) today […]

Clinical Development Program in LAL Deficiency By Synageva

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LAL Deficiency, a lysosomal storage disorder, has early and late onset phenotypes, also referred to as Wolman Disease or Cholesteryl Ester Storage Disease (CESD), respectively. There is no approved treatment for LAL Deficiency.  Interventional research studies are currently recruiting patients for treatment with SBC-102.  SBC-102 […]