Blogs

Unique Genes Event in Honor of Congenital Central Hypoventilation Syndrome

January 7, 2014

Unique Genes, is a kid friendly event being held at the Fraser Activity Center on February 26, 2014 from 6pm-8pm.

COST: The event will be a pre-pay event and cost $5 per child.

Each child will bring a pair of jeans to decorate. We will supply the paint and embellishments as well as snacks and juice. The idea for the event is to promote awareness for rare genetic disorders. Each child will create their own unique or rare jeans (Get it, genes?) to wear on Rare Disease Day, February 28, 2014.

Space is limited for this event. Reservations cannot be made until payment has been received. Please send all reservation requests to [email protected] in order to receive the address where payment can be mailed. All children must be accompanied by an adult chaperone. There is no additional charge for the adult chaperons.

This event is open to the public and will be held at the Fraser Activity Center: 34935 Hidden Pine Drive, Fraser, MI 48026.

Stay Connected

Sign up for updates straight to your inbox.

FacebookTwitterInstagramYoutube