Twiggy: Saving a Life for Vascular Ehlers Danlos


On most days, Vascular Ehlers Danlos takes a back seat in my life, thanks to a magical creature continually by my side.   Twiggy.  Twiggy, a Unicorn for Vascular Ehlers Danlos Awareness can be found on my Facebook Page HERE. Twiggy, as seen on my […]

Desperate Measures

Coming_Unglued_Ehlers_Danlos_ Syndrome

This is one of the posts from my blog, “Coming Unglued“, about life with Ehlers-Danlos Syndrome which is a rare connective tissue disorder in which the body’s ability to produce enough collagen is severely limited due to genetic mutations.  In 1998, my first husband died from the […]