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Tag: World Rare Disease Day

A total of 131 posts are filed under World Rare Disease Day
Official Portrait 2013
Rep. Carter Raises Awareness for Undiagnosed Diseases with CAL Network Act
Video – Rare Disease Day In recognition of Rare Disease Day, Congressman John Carter (TX-31), member of the Rare Disease Caucus, is… Continue Reading
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#HealthTalk: Global Genes Pairs up with EverydayHealth.com for Rare Disease Day Twitter Chat!
Join us Friday, February 28th at 12:00-1:00pm EST for a twitter chat with EverydayHealth.com! We’ll be discussing all things Rare… Continue Reading
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4th Annual Sanford Rare Disease Symposium 2/28/2013
Name Liz Donohue Company Sanford Research Email cords@sanfordhealth.org Location of Event Sioux Falls, South Dakota Relevant Website… Continue Reading
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“Especially Beautiful” Models Raise Awareness of Rare Disease
Special needs models will be the focal point of the 1st Annual ‘Especially Beautiful Fashion Show’ in Orange County. These models, all… Continue Reading
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$15,000 in 15 Days for Dup15q/Wear Blue for Dup15q
Company Dup15q Alliance Location of Event worldwide Relevant Website http://www.dup15q.org/rarediseaseday.html Rare Disease | Genetic… Continue Reading
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Rare Disease Day Event in Brockton, MA
Location of Event Christ Church Brockton MA Rare Disease | Genetic Condition 2P 22.2-22.1 5.2KB (deletion) Date of Event 02/28/2014 Name of… Continue Reading
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Global Genes to Celebrate World Rare Disease Day on Lifetime TV’s “The Balancing Act”
Global Genes is excited to announce that we will be a guest on Lifetime TV’s “The Balancing Act” in their Behind the… Continue Reading