“A Victory for One is a Victory for Everyone” Taylor’s Tale Creates Moving Video for WRDD

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Taylor’s Tale hosted a candlelight vigil on February 28 to commemorate Rare Disease Day 2014. The vigil took place at Freedom Park in Charlotte, North Carolina; it featured music, prayer and appearances by a public official and local rare disease heroes. Rare Disease Day is […]

Rare Diseases Foundation of Iran holds Word Rare Disease Day in Tehran

The Rare Disease Foundation of Iran holds World Rare Disease Day Event.

Date of Event:  February 27th, 2013 Organization: Rare Diseases Foundation of Iran Location:  Tehran, Iran This Conference is cordially hosted by the Iranian Rare Disease Foundation (RADOIR) and it will have the honor of the presence of experts on rare diseases from Iran and other countries. The […]

Rare Disease Bloggers Unite With Blog Hop to Raise Awareness for World Rare Disease Day 2012 and 1 Million For Rare™ Campaign

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Rare Disease Bloggers Unite With “Blog Hop” to Raise Awareness for World Rare Disease Day 2012 and 1 Million For Rare† Campaign DANA POINT, Calif., Jan. 30, 2012 /PRNewswire via COMTEX/ — The R.A.R.E. Project(TM) ( www.rareproject.org ) and The Global Genes Project(TM) ( www.globalgenesproject.org […]