“The Balancing Act” on Lifetime TV To Launch Mini Series Called “Roulette Wheel of Rare and Genetic Diseases”

Lifetime TV to Feature Rare and Genetic Diseases
Lifetime TV to Feature Rare and Genetic Diseases

“The Balancing Act” on Lifetime TV is planning a new 6-part mini-series called the “Roulette Wheel of Rare and Genetic Diseases.”  The goal of the series is to raise awareness of rare and genetic conditions while helping to inspire people more active role in understand their genes.

The “Roulette Wheel of Rare and Genetic Diseases” series will go in-depth with coverage on Cushing’s Syndrome, Hereditary Angioedema (HAE), Hunter Syndrome, Lysosomal Acid Lipase (LAL) Deficiency, Prader-Willi Syndrome, and more.  The 6-part mini-series is scheduled to launch in October 2012 and air through Q2 2013.

As a mother of a child with an undiagnosed rare disease, I know first-hand the expense and the heartache of the search for an answer, or even a name to what is attacking my child’s body.  My hope is that our stories will help connect the dots,” says Carri Levy, Senior Associate Producer and visionary behind the series.

What rare and genetic disease should Lifetime TV feature?  Let us know and we’ll pass along your ideas!

The press release with more details is located  here.

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Global Genes Comments

  1. I would like to see you present a feature on Relasping Polychondritis. It is rare autoimmune condition that attacks the cartilage of the body. The number of individuals being affected with this condition seems to be growing everyday. Unfortunately it is all too often misdiagnosed and the current array of drugs only mask the symptoms but not without serious side effects. Thank you for your help and concern.

    Regards,
    Dwayne

  2. karen rsmith says:

    I would like to see the three diseases that I personally suffer from. Recurring Polychondritis, Sarcoidosis and Paraganglioma Tumour. I would also like to hear about research into the hereditary nature of these diseases as two of my children have also been diagnosed with recurring polychondritis.
    thankyou.

  3. Carl Johnson says:

    We would love to see a show on Relapsing Polychondritis. It is a very rare multisystem autoimmune disease. It affects all ages and attacks cartilage and proteoglycan rich tissues. So it can attack ears, nose, trachea, bronchi, heart, eyes, joints and other internal organs. Very few doctors have ever seen the disease so it usually takes 2-3 years and going to multiple doctors to get a correct diagnosis. Studies are desperately needed to determine how to treat it Properly. Without proper treatment it can lead to death very quickly.

  4. I would also like to see a segment on Relapsing Polychondritis. This disease is interesting because it can manifest itself in so many different ways. It is an autoimmune disease in which the body attacks the cartilage, so in addition to all joints, the ears, nose, trachea, and chest are all affected.

  5. I would like to suggest featuring the rare autoimmune disease: Relapsing Polychondritus. It’s an autoimmune disease that attacks the joints and cartilage and is progressive. There is a FaceBook support group for all of us RP patients that includes people from all over the world.

  6. I would love to see you feature Relapsing Polychondritis. (RP) We have a support group that is growing on Facebook. We think that our disease is actually underdiagnosed because so many people and doctors do not know about us. Our disease is progressive, so early diagnosis would help so many people.

  7. I believe XP would be a compelling subject for this show. Xeroderma Pigmentosum is rare, genetic, and very interesting to learn about for an outsider.

  8. We love Global Genes | R.A.R.E. and your commitment to education!

    • Heather Earley says:

      Thank you Carri! Education is just the fuel our community needs! Raising Rare disease awareness, unifying and empowering the rare disease community is a sub-set to funding innovative programs – programs which will help initiate much needed research and life-saving treatments. Kudo’s to you for all your efforts and dedication to this well-deserved mission.

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  1. [...] out the official press release to learn more about the series, and take a look at the Global Genes Project blog to find out which rare diseases will be [...]

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