Here are a few NIH related items that Children’s Rare Disease Network folks might find interesting.
1.
Share your health experiences with NIH!
Information gathered will assist the agency in developing and disseminating health, medical, and scientific information to a broader variety of audiences.  The request for information may be completed online in English or downloaded from the Web site in Spanish.  See NIH Request for Information.
2.
NIH wants to know what health issues are important to you – consider sending a one page summary to: NIH-Listens@NIH.gov.  These emails are being read – I heard back from NIH in less than a week.
3.
The NIH announced earlier this week a second phase of the Rare Diseases Clinical Research Network (RDCRN) including funds for 19 research consortia.  This is an endeavor with remarkable researchers and amazing patient advocacy groups.  See NIH Press Release.
4.
The New York Times features an article on Dr. Francis Collins of NIH, see NYT Health.
:: Catherine Calhoun

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