In July, we got a great gift that we were not expecting. After some travel for the foundation in May and June, I went away with family on vacation. But others were at work, and it was a good thing. Following a talk I gave at the Rare Disease Summit May 14, 2009 (hosted by NORD) that highlighted our key issues with the regulatory process, Dr. Francis Collins (before becoming NIH director) talked with Senator Brownback (R, Kansas) regarding rare and neglected disease regulation that lead to an amendment sponsored by Senator Brownback (R, Kansas) and Senator Brown (D, Ohio) to the 2010 FDA appropriation bill.