Mandating Insurance Coverage for families.  We have joined the Save Babies Through Screening Foundation and National PKU Alliance in signing a letter of support for legislation introduced by Senator John Kerry (D-MA). The legislation—to be called the Medical Foods Equity Act of 2009—will mandate that all insurance companies and federal plans provide coverage for the medical foods used to treat inborn errors of metabolism. Currently, some states do require reimbursement for the cost of these foods but there is no national legislation to require this.

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