The National Human Genome Research Institute at the National Institutes of Health (NIH) is sponsoring a study that seeks to learn more about how parents of children with an undiagnosed medical condition think and feel about their child’s condition. We hope that this knowledge will improve the health care and counseling for these parents. Men and women who are 18 years or older and have at least one child with a medical condition that has remained undiagnosed for more than 2 years are needed to take part in this study.
If you would like more information regarding this study, please visit:
https://clinicaltrials.gov/ct2/show/NCT00955370?term=undiagnosed&rank=2

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