A big thanks to the folks at CheckOrphan for celebrating the birthday of blue jeans with us on May 20. Read the CheckOrphan blog post “Happy birthday, Blue Jeans!” —
When you think about it, there is a close relationship between jeans and genes: they are both universal, they both come in pairs, and they are unique to the individual. Jeans and genes seem to have a natural affinity, which didn’t go unnoticed by the founders of the Global Genes Project. As the international symbol of hope for children suffering from life threatening and chronically debilitating rare diseases, most of them of genetic origin, they picked the blue denim ribbon — the Genes Ribbon.
The Global Genes Project is a grassroots effort, aimed at raising awareness of rare diseases and rare genetic disorders. This global movement was inspired by a video created by a rare disease parent advocate for Rare Disease Day 2009.
“The Global Genes Project is providing a new platform to help unite people under a common goal and to make a difference for all children suffering from rare diseases,” said Nicole Boice, founder and CEO of the Global Genes Project. “In many ways, this is not so much a campaign, it’s a global movement. We want to create a world where children suffering from rare and genetic diseases have equal access to life-saving drug treatments.”