One of my Schimke heroes is Emily Koester from Nebraska, along with her parents Erin and Joe Koester.
Be The Change in MN recognizes and supports the tremendous need for research and testing of this rare disease.
Please consider their request below.
Emily Miranda Koester’s Nebraska Little Giants Day 1st Anniversay, proclaimed by Governor Dave Heineman last year is coming up on FEBRUARY 10th!
The fight continues… The life expectancy for Emily’s disease (SIOD- Schimke Immuno-osseous Dysplasia) is age 8-15! Emily is 7 and 1/2 now.
The Schimke researchers are on the brink of a drug that may help PROLONG lives of SIOD.
LET EMILY LIVE TO TEST IT! Here’s how to GIVE NOW:
1. Go to www.littlegiantsfoundation.org and click on the far right tab: GIVE NOW
2. Send us a check made out to Little Giants Foundation and we will send a mass mailing in.
Address: Erin Koester 15603 S. Hwy 6 Gretna NE 68028
3. SEND this site and/or FACEBOOK, LGF site to EVERYONE YOU KNOW to contribute!
We are parents pleading on bended knee!
Don’t delay; Emily’s life depends on it.
Mommy Erin and Daddy Joe